Tuesday, June 17, 2008

Update on Baby Kayelyn

This update is from the new mama and daddy:

Hello Everyone,Good news, Kayelyn is slowly improving. We are Cautiously Optimistic- BUT--She is responding well to treatment. She has a huge team of doctors calledfellows that have been assigned to her case-- these guys are the "big guns"of neonatologists. They are a special team of doctors assigned to thecritical/high risk infants in the NICU. The official diagnosis is RDS (Respiratory Distress Syndrome), PPHN(Persistant Pulmonary Hypertension) and Pneumothorax. The odds of a fullterm baby being born with RDS are 5% of all babies born. The odds ofdeveloping problems like Kayelyn's are less than 1%. She is fighting hard and so far is really doing well. The Nitric Oxide isworking. As of today, both of her chest tubes, that have been used to drainair and fluid from her chest through from the pneumothorax have been clampedoff. The doctor will have them out by Wednesday at the latest. This is ahuge step in the right direction. Her oxygen she is receiving is at 51% andshe is saturating at 100%. If her next blood gas comes back good, they willlower her to 48%. Tomorrow they will begin weaning off the nitric andchanging off the oscillator onto a conventional ventilator. Once thishappens, Nathan and I can hold her!! We hope this happens in the next 2-3weeks-- it could always happen sooner but this is what the doctor isprojecting. She has to be at 20% oxygen to be breathing like you and I. Itstill looks like at least a month until she is released, if not longer (upto 3 months). They have also let up on her sedation/paralytic and she isstarting to come around and open her eyes and move. As long as shecooperates with the doctors (She gets a bit fiesty at times) they will allowher to stay off the sedation. So this is the latest.... We will email again soon with more. Please continue to pray!!!
Love,Nathan, Melissa, Briley, Kayleyn, Zoey & Sully

3 comments:

Stephanie said...

My thoughts and prayers go out to you guys and your family...

Stephanie said...

My prayers are with the whole family. I know she is in the best of care though. THanks for keeping us updated through this tough time.

Krystyn said...

Thanks for the update. I was wondering how she was doing! I'm glad that she is getting such good care.